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Mobility, Transfers and Wheelchairs

The First Steps: Basic Equipment and Exercise Program

Equipment for ALS- There are some pretty consistent and serious pieces of equipment an ALS person will need. I've listed them. As you read through this and other pages, with explanations and websites, you'll find the more advance and serious equipment. Many can be  borrowed from your ALS association's loaner program. At first, before the serious stuff, you'll need things like: a cane, portable wheelchair, walker, various braces for upper and lower limbs and extremities, larger or adapted clothing and a light stretching/exercise/yoga program. All these can be found online or supplied by your ALS clinic or your neurologist and therapists.  Also, pulmonary function becomes key. Be sure you're seeing a pulmonologist familiar with ALS. The disease sucks, but you can live productively with it. It's frightening, I know, but you can do it!

 

http://www.invacare.com/cgi-bin/imhqprd/products-services.jsp

 

Permobil: Power Wheelchairs

As my ALS progressed I lost the ability to walk. At that point I was introduced by my clinic to the permobil power wheelchair. I highly recommend this chair for ALS patients. It's big and a little bulky, but very comfortable, user friendly and has all the adaptive necessary options as you progress. I started with hand controls, but have "graduated" to operating the chair by slight head movements using a head array option. Your neurologist or PT/OT will help you find a dealer.  But start early! It may take 6 months or more from order to delivery.    

 

http://www.permobil.com

Transfer Lifts: Hoyer and EasyPivot Lift

Assisted Living Lifts- one of the first serious pieces of equipment you'll need is a sling lift, or alternative way to pick you up and transfer you; bed to chair, chair to commode and eventually back into bed. A Hoyer, or other sling lift could work well. My advice is to get a powered, not manual crank, lift. TWO SLINGS TO ALTERNATE works very well i case you soil one etc. Also I discovered a new device called a Pivot Lift.  I never used it, but it looks easy enough.  It may only work for a time, depending how your disease progresses. I'll list both websites here. Good luck!

 

http://www.wize.com/Hoyer-Lifts/products-html?nxtg=2c80a500510-7E2C577399F809D3    

 

http://www.phc-online.com/How_to_use_Hoyer-Lift_a/146.htm  

 

http://www.randscot.com/lifts

Ride-Away: Handicap Transportation

Wheelchair Accessible Vans- only one place to go, RIDE-AWAY. Speak to Roger Largeness. RIDE-AWAY is in many east coast states. New, used and rental. Great service, great backstory, empathetic and understanding! (888) 743-3292.

http://www.ride-away.com/

 

https://www.youtube.com/watch?v=zSHzspJALyo

 

https://www.youtube.com/watch?v=NGeQtMIqncI

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